Thursday, December 20, 2007

God's will...

"All things work together for good." Romans 8:28a.

People like to quote that verse when things "go wrong". Some people see it as everything that happens will be good. But most people forgot to quote the rest of the verse.

"All things work together for good to them that love God and are called according to HIS purpose." Whose purpose? I know what most people's "purpose" is--and I’ve been guilty too, wanting it easy and life to go good. And sometimes it is, but what do we learn in that? What is God's purpose in our lives? Again, we have to keep reading: "For whom He foreknew, he also predestined to be conformed to the image of His Son." Wow, what a high calling. To be like Christ--and trials, if we let them, will help us to this end. Why am I saying all this? Well, for those of you who don't know yet (or got the tearful 1/2 version that I could barely choke out), here's the scoop.

We're having a girl!!! (We’re going to choose a name tonight). For Christmas presents for our parents, we got my ultrasound moved up two weeks (Tues the 18th-on my 18th week of pregnancy) and we were hoping to put the ultrasound picture in either a pink or blue frame and give it to them for a surprise (and no it was not easy keeping that a secret from future grandparents that I see everyday!!). Well, the tech did the ultrasound (didn't really say anything), left for 20 minutes and came back for about 2 minutes before the Dr came in. He sat down, and as gently as he could, told me something was wrong. There was what appeared to be a cyst at the base of the skull, and the spinal cord appeared to be growing outside of the spinal column, and that there was a very, very good possibility of major birth defects--possible fatal, and they wanted to send me to a specialist in Birmingham the next day. It took a minute to register before the tears came. I drove back to work almost in shock, and then lost it at work telling them I wouldn't be in the next day. Josh was in class and unreachable, so I called my mother-in-law and through lots of tears and "what?", "slow down", "repeat that" and "don't panic yet", I got my story of the botched Christmas present across. So yesterday, the two of us took the long trip to Birmingham (3 hours one way) to see the specialist.

They did an ultrasound, lots of measurements and then dropped the bombshell. He was very suspicious of Turner's Syndrome (not 100% but 99% sure); that is a chromosome problem--generally an extra one (or 1 1/2, 1 1/4 etc), and can vary from mild to severe. The "cyst" that Dr. Pollard had seen was actually what's called a cystic hygroma (CH)--that is fluid around the brain and in the neck. Apparently her little lymphatic system isn't working right and so instead of putting the fluid back into the bloodstream, it lets it leak wherever it can go. In our baby's case, around the brain, neck, spinal cord and abdomen. I'm not real experienced with ultrasound, but I can see more than most people thanks to Dr. Candace and Dr. Ralph, and from what I could see, it was bad. According to the Dr., there is a very, very good chance of miscarriage and a very slim possibility for a full term baby, BUT if she makes it that long, he was doubtful that she would live more than a day or two.

SO, needless to say, it was a very long, tearful ride home. While it is a "genetic" problem, it is not our genetics that are the problem--neither Josh or I are a carrier and none of our future children will be anymore at risk than this one was (~1in 25,000); According to the dr, 3 in 100 pregnancy's have very bad and/or fatal birth defects and we are one of the 3. Also in the Dr's words--"it's just a fluke thing". No, not a fluke. God has a plan and He made her perfect according to His will. Why? I have no idea, but it is His will. But I also know, she is not dead yet, and God can do miracles and can fix her little body and make her perfectly normal, or special needs, but alive. However, I know He can also choose to take her home at anytime. Not what I want to happen, but I guess we will accept what God brings our way.

So, all that said. Pray for us--for strength and wisdom. We very well might just be getting over and accepting this news when we lose her and have to go through this again. So keep us in your prayers. It will be a tough Christmas but we "can do all things through Christ who strengthens" us. And if God decides to take our precious child home, we can try to follow King David's example--pray fervently for God to heal the child, but if he takes her home, weep and then--rejoice!! We will meet her in heaven--maybe for the first time and she will have a healthy, glorified and perfect body. And she will have already been in the arms of our great Savior, Jesus Christ.

17 comments:

John said...

We Love You and are praying for you, as are many of our family and friends.

-John

Mishel said...

Dearest Sarah and Josh,

It is through tears that I write this after reading your post. Thank you for sharing your heart regarding your precious little girl...Rande, Zach and I have been praying and will continue.

In Christ,
Mishel (Ashleigh's mom)

Paula said...

I'm here from Mishel's blog, and I just wanted to let you know that I'm praying for your family and that precious little one that you're carrying. Keep claiming Phil. 4:13.

Because of Him,
Mrs. C

Becky K. said...

Hi Josh and Sarah,
I came over from Ashleigh's blog.

What you are going through must be so hard. I have had an experience with a traumatic birth defect with our oldest son and have a small idea of the way it can blindside you. We found out shortly after our son's birth. He is a miracle child...but not without developmental delays, etc. However God intends this to play out for you it would seem you already have a great relationship with your Heavenly Father to understand HIS complete love for you and to be accepting of HIS will.

I rambled on...so sorry. Just wanted you to know that I think you are already incredible for sharing this and I will be praying for you from here in Lancaster County, PA.
Becky K.

Springjoy said...

Sarah and Josh.. I am a stranger, I know, a friend of Ash's, and thus I heard of you. I wanted you to know that my family-- all of us-- are lifting you up. We serve a God of miracles, a God who does work all things...even those that are so hard to understand... for good.

Keep trusting Him. Keep holding on.


:hug:

Chantel

Ashleigh Baker said...

We love you... you know we are holding you in prayer. You are amazing, Sarah... I'm blessed to be able to call you my sister.

Grafted Branch said...

May you continue to cry out to the God of all comfort, and may He continue to be faithful to envelop you with His perfect love.

Lucy said...

I came here from Ashley's blog, just to give you a virtual hug from a total stranger - which as I type I think is maybe not such a good idea.

I was born with a rare chromosonal disorder, as were others in my family, and I have a cousin who has Turners.

I am praying for your baby and for you and your husband - and most of all that God would be a beautiful comfort to you, carrying you so close in His arms that you feel you can hear His heart beat.

Michelle Noteboom said...

Sarah - I am a mom to a 7 year Turner's girl. Like you I was told chances were slim she would go to term when they saw the fluid in the sonogram. Told me there was a almost a 100% chance of miscarriage. To make a long story short, two weeks later the fluid almost totally resolved and I have an amazing child (her name is Hope by the way.) Keep praying.

Ana said...

Sarah~
Thank you for posting details about such a tender, near to your heart subject.
I rejoice to see that the Lord is in your thoughts and that He is bringing you comfort. You will be in my prayers. Here is a poem that might just give you a little comfort, as it has given to me.

http://anas-corner.blogspot.com/2007/12/be-near-to-me.html

Thank you again for sharing what's going on in your life, no matter how hard it is, God will strengthen and He will bring you through.

Tiffany said...

I'm sorry you all are going through such a trying time right now. We will continue to pray for all of you.

Mrs. Taft said...

I will be praying for you and your family. Your courage is amazing! :) I'm praying for a miracle, but in some ways, the miracle already occurred. And whether you get to experience your precious one on this earth, or have a sweet reunion in eternity, she will always be your precious little girl. :)

Heather said...

Hi, I came over from Ash's site. Tears welled up as soon as I started reading. I cannot even imagine the rollercoaster of emotions you are on right now. I am (((praying))) for you and that sweet baby girl. Lifting you up to the throne of grace. Blessings, and I will keep checking back.-Heather in Okinawa

Jo Ann Fore said...

Sarah,

I just randomly (or providentially I would choose) came aross your site because i have a google alert for "God's purpose in our lives". I want you to know I'm praying for your little girl and your family. Your vulnerable and trusting faith is precious. May God grant you strenth and peace during this journey.

Merry Christmas!
Jo Ann


Jo Ann Fore

Cherlyn said...

I too found your site through blog hopping. I will hold you and yours up in my prayers. May God's grace continually shine upon you.

Sarah B. said...

Dearest Sarah and Josh,
I miss you both so much! I was saddened to hear your news; but I also rejoice because I know that God has your baby in His arms and He will hold your hands as you go down this difficult path. Your faith is a blessing and a model that I look up to. I wish I could see you, but I will one day (whether on Earth or in Heaven). Remember Joshua 1:9 "Have not I commanded thee? Be strong and of a good courage; be not afraid neither be thou dismayed, for the Lord thy God is with thee, whithersoever thou goest." God bless!
Your sister in Christ,
Sarah Benson

Kristi said...

Hi, I found your blog through Ashleigh. Your heartfelt post was a blessing as you conveyed such a sweet spirit and attitude toward God's will and purpose in your and Josh's lives and the life of your little girl.
Please know that there is a family in North Carolina that is praying for your sweet little one and for you. May God's hand be seen in all things.

~Kristi